Original Paper
Examining the Supports and Advice That Women With Intimate
Partner Violence Experience Received in Online Health
Communities: Text Mining Approach
Vivian Hui
1,2
, RN, BSN, PhD; Malavika Eby
3
; Rose Eva Constantino
2
, RN, PhD, JD; Heeyoung Lee
2
, PMHNP-BC,
PhD; Jamie Zelazny
2
, RN, MPH, PhD; Judy C Chang
4
, MD, MPH; Daqing He
5
, PhD; Young Ji Lee
2,6
, RN, MS, PhD
1
Center for Smart Health, School of Nursing, The Hong Kong Polytechnic University, Hong Kong, China (Hong Kong)
2
Health and Community Systems, School of Nursing, University of Pittsburgh, Pittsburgh, PA, United States
3
Department of Psychology, Swarthmore College, Swarthmore, PA, United States
4
Department of Obstetrics, Gynecology & Reproductive Sciences, and Internal Medicine, University of Pittsburgh, Pittsburgh, PA, United States
5
Department of Informatics and Networked Systems, School of Computing and Information, University of Pittsburgh, Pittsburgh, PA, United States
6
Department of Biomedical Informatics, School of Medicine, University of Pittsburgh, Pittsburgh, PA, United States
Corresponding Author:
Vivian Hui, RN, BSN, PhD
Center for Smart Health, School of Nursing
The Hong Kong Polytechnic University
HJ 544, Hung Hom, Kowloon
Hong Kong
China (Hong Kong)
Phone: 852 27664691
Abstract
Background: Intimate partner violence (IPV) is an underreported public health crisis primarily affecting women associated
with severe health conditions and can lead to a high rate of homicide. Owing to the COVID-19 pandemic, more women with IPV
experiences visited online health communities (OHCs) to seek help because of anonymity. However, little is known regarding
whether their help requests were answered and whether the information provided was delivered in an appropriate manner. To
understand the help-seeking information sought and given in OHCs, extraction of postings and linguistic features could be helpful
to develop automated models to improve future help-seeking experiences.
Objective: The objective of this study was to examine the types and patterns (ie, communication styles) of the advice offered
by OHC members and whether the information received from women matched their expressed needs in their initial postings.
Methods: We examined data from Reddit using data from subreddit community r/domesticviolence posts from November 14,
2020, through November 14, 2021, during the COVID-19 pandemic. We included posts from women aged 18 years who
self-identified or described experiencing IPV and requested advice or help in this subreddit community. Posts from nonabused
women and women aged <18 years, non-English posts, good news announcements, gratitude posts without any advice seeking,
and posts related to advertisements were excluded. We developed a codebook and annotated the postings in an iterative manner.
Initial posts were also quantified using Linguistic Inquiry and Word Count to categorize linguistic and posting features. Postings
were then classified into 2 categories (ie, matched needs and unmatched needs) according to the types of help sought and received
in OHCs to capture the help-seeking result. Nonparametric statistical analysis (ie, 2-tailed t test or Mann-Whitney U test) was
used to compare the linguistic and posting features between matched and unmatched needs.
Results: Overall, 250 postings were included, and 200 (80%) posting response comments matched with the type of help requested
in initial postings, with legal advice and IPV knowledge achieving the highest matching rate. Overall, 17 linguistic or posting
features were found to be significantly different between the 2 groups (ie, matched help and unmatched help). Positive title
sentiment and linguistic features in postings containing health and wellness wordings were associated with unmatched needs
postings, whereas the other 14 features were associated with postings with matched needs.
Conclusions: OHCs can extract the linguistic and posting features to understand the help-seeking result among women with
IPV experiences. Features identified in this corpus reflected the differences found between the 2 groups. This is the first study
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that leveraged Linguistic Inquiry and Word Count to shed light on generating predictive features from unstructured text in OHCs,
which could guide future algorithm development to detect help-seeking results within OHCs effectively.
(J Med Internet Res 2023;25:e48607) doi: 10.2196/48607
KEYWORDS
intimate partner violence; text mining; social media; online health communities; linguistic features
Introduction
Intimate partner violence (IPV) is one of the most traumatic,
multifaceted, and widespread public health challenges that
jeopardizes women’s health in a life span. Statistics show that
1 in 3 women have experienced some form of physical violence
from their intimate partner in their lifetime [1]. Inequitably,
women who have experienced IPV face more severe challenges
owing to child-rearing obligations, financial dependence, and
IPV-related mental health problems [2-4]. These women can
be more difficult to treat compared with those experiencing
other health issues, as great societal pressure to protect the peace
and reputation of their families is exerted on women. Owing to
shame and guilt, women refrain from asking for formal
assistance because they believe that reporting IPV could put
their family’s stability and privacy at risk. Therefore, the
magnitude of IPV cases is consistently underreported in public
data.
Successful help seeking could promote mental healing and
improve the coping mechanisms, quality of life, and resilience
of these women following traumatic and abusive experiences
[5-8]. According to a previous study, women with IPV
experience requested assistance with safety planning, financial
aspects, childbearing issues, and health issues related to physical
and emotional abuse [9]. Notably, they tended to seek assistance
from close friends and family members rather than from
institutional agencies such as health care agencies and the police
[10].
Given the proliferation of computer literacy, it is convenient
for those women to share their struggles and ask for guidance
by using an anonymous web-based account. Online health
communities (OHCs), which are web-based platforms created
for a particular group of individuals dealing with a specific
illness or public health issue, may help eliminate shameful and
guilty feelings from in-person help-seeking processes. Tanis
[11] delineated that the anonymity and deinhibiting effects of
OHCs are beneficial to the self-disclosure of women with IPV
experiences. According to Moors and Webber [12], OHCs
provide a secure, easily accessible, and prompt response
environment where these women could openly discuss sensitive
family matters and traumatic experiences.
Nevertheless, not all attempts and outcomes of help seeking are
desirable. As shown in previous studies, women with IPV
experiences are at risk of secondary exposure to violence. For
example, survivor-blaming and critical comments from friends
or police officers are the main catalysts reported in recent
literature [13,14]. Web-based platforms have been criticized
for misinformation and selfish responses to individuals who
disclose their abusive experiences. Moreover, OHC members
may misuse the freedom offered by flexible OHC guidelines to
make careless responses or offer unsolicited advice, including
recommendations for women to leave their abusive relationships
or call law enforcement agency without cautious and thorough
planning, which may lead to far-reaching repercussions such
as homicide [15]. As such, providing constructive and
empowering responses in a nonjudgmental manner is the
backbone of facilitating help-seeking initiatives among women
with IPV experience.
During the COVID-19 pandemic, IPV cases surged to alarming
levels as a result of the quarantine orders and strict social
distancing policy [16]. López et al [17] reported the increased
use of social networking sites, such as Twitter. Lyons and
Brewer [18] specifically examined the contents of a particular
OHC on Reddit and reported IPV survivors’experience during
the lockdown, including service disruption and preparation to
leave their abusers. As a result of these unprecedented responses
on OHCs, it is critical to examine whether these responses made
by OHC members are helpful to women with traumatic IPV
experiences. However, little is known about the types of advice
provided and the manners in which OHC members offer
guidance to women with IPV experience. There is also a lack
of clear understanding of the number of women in OHCs who
successfully received relevant responses from OHC members
or what types of assistance are most frequently provided.
Without bridging this knowledge gap, it will be challenging to
evaluate the value of OHCs for women who worry about
privacy, self-doubt, and shame in help seeking. Therefore, this
study aimed to examine the types and patterns (ie,
communication styles such as directive, assertive, and
supportive) of the advice offered by OHC members and whether
the information received by women matched their expressed
needs in their initial postings. The research questions of this
study included the following:
1.
What types of advice do OHCs give to women with IPV
experiences?
2.
What patterns of communication were presented by OHC
members to build the credibility of the advice (ie, how do
OHC members construct their comments to convince others
to take their advice)?
3.
How do women with IPV experiences receive the help they
sought from OHCs (ie, are there specific ways they prefer
to receive help)?
4.
What types of needs were mainly received and did it match
with their expressed needs?
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Methods
Study Design
This was a descriptive, exploratory study to explore the types
of help received by women with IPV experiences in OHCs.
Data Source
Data were collected from a social networking site, Reddit, to
understand the types of help received by women with IPV
experiences in OHCs. Reddit is a platform for knowledge and
information exchange based on a wide range of topics
categorized into subreddit communities, denoted as r/. This
study selected r/domesticviolence as the data source to
understand how women received help after sharing their IPV
experience. This subreddit community was created in 2010 and
had >22,000 members at the time of data collection. There are
2 rationales for choosing Reddit as our data source. First, the
Reddit policy allows free-text entry without word limits in user
postings. Second, the temporary “throwaway” account feature
is important for women to protect their privacy after disclosure
on Reddit. More comprehensive and detailed information about
users’ perspectives can be extracted from postings and
comments on Reddit compared with other OHCs.
Inclusion and Exclusion Criteria
Regarding inclusion criteria, we included postings that were
self-disclosed as written by adult women (ie, aged 18 years)
with IPV experiences and sought help to solve IPV-related
issues. However, postings that were written in a non-English
language, posts written by underage women or women with no
abuse experience, posts without help-seeking attempts, and
advertisements were excluded from our data set.
Data Structure
Data were collected between November 14, 2020, and
November 14, 2021, during the COVID-19 pandemic, and the
username, user number, URL, post title, post content, score (ie,
the number of upvotes minus the number of downvotes in the
postings), ups (ie, the number of upvotes), downs (ie, the number
of downvotes), and comments were extracted using the Python
program package (version 3.8; Python Software Foundation).
All usernames were deidentified and replaced with random user
IDs for protection of privacy.
Postings were ranked based on the number of comments and
number of times the original poster (OP) returned to the thread.
To achieve the objective of this study, we further excluded
postings without any comments to focus on the comments’
quality and types of advice given to women with IPV
experiences.
Data Analysis
Data Annotation
With reference to the latest help-seeking literature published
by Sivagurunathan et al [19], a codebook was created by the
first author (VH) to guide the annotation process. Overall, 2
nursing researchers annotated the data set and crosschecked
with 2 other undergraduate students for quality assurance.
Postings with ambiguous content or unclear information were
further screened by the first author (VH) and verified by IPV
domain experts (RC and JCC). Once the codes for help-seeking
behavior have been saturated from the data set, the first author
and domain experts finalized the codebook. The annotation
codebook included all the variables of interest, such as types of
help received (ie, information and emotional), networking offer
(ie, OHC members provide networking opportunity in their
responses), and experience sharing (ie, OHC members provide
their own experience in their responses).
Reliability of the Coded Data Set
The codebook provided clear guidelines about how each item
should be annotated. The entire annotation process was
performed using Excel (Microsoft Corp). All annotators were
required to highlight the sentence in each posting, based on
initial posts and comments, respectively. For information and
emotional support, annotators were required to highlight the
clues for each type of help received for quality assurance.
Overall, 2 nursing annotators (ie, principal investigator and
nursing undergraduate student) coded the complete data set and
discussed discrepancies on a weekly or biweekly basis. Then,
2 other undergraduate annotators in psychology and nursing
major with understanding of the IPV rechecked the results and
screened the major discrepancies for further discussion. The
final results were discussed and verified by 2 domain experts
in IPV research RC and JCC. To ensure the reliability of our
coded data set, Cohen κ agreement was calculated using the
SPSS statistics software package [20]. The Cohen κ agreement
obtained was 0.66, which indicates a substantial agreement
between annotators.
Descriptive Statistics
The types of help (ie, information and emotional), networking
offer, and experience sharing were quantified using descriptive
statistics (ie, frequency and percentage).
Thematic Analysis
On the basis of the thematic analysis steps outlined by Brooks
et al [21], the comments on posts were qualitatively analyzed
to understand the themes of help-seeking behavior among
women with IPV experiences. Moreover, this study followed
the Reddit qualitative thematic analysis framework designed
by Caplan and Purser [22]. The project leader read through the
postings and responses independently to highlight the sentences
about help seeking. Then, researchers were instructed to group
similar help-seeking responses into different hierarchical
relationships. All discrepancies were discussed, and the
hierarchy was reorganized in an iterative manner. Multiple
annotations and themes were coded as mutually inclusively
when applicable, as multiple types of help were sometimes
extracted from the same comment. The final thematic codebook
and hierarchy were verified by IPV domain experts (RC and
JCC).
Matching Needs
To count the number of needs matched and unmatched in the
same posting, 4 variables were created initially (ie, matched,
unmatched, partly matched, and broad coverage). However, as
we only annotated 3.2% (8/250) of the postings with partially
matched needs, we further collapsed the variables by merging
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“partly matched” and “broad coverage” into “matched.
Therefore, a dichotomized variable was created, and we further
explored the linguistic features of help seeking (ie, matched
needs or unmatched needs). In this study, “matched needs” refer
to the situations in which the OP receives the information they
requested from the comments. In contrast, “unmatched needs”
refer to situations in which the OP did not receive the
information they requested from the comments.
Analysis of Linguistic Features
Initial posting features include the scores, number of comments,
links shared, number of words on the initial post, and title
sentiment. New variables were computed, such as the number
of emojis used and the title sentiment score, to enrich the
linguistic features in the data set. Emojis were counted using
Python, and title sentiment score was calculated using Text2Data
plug-in on Excel. All initial post content was quantified and
analyzed using the Linguistic Inquiry and Word Count (LIWC)
tool, where 93 categories were included, ranging from emotional
affect, cognitive process, self-focus, perceptions, and so on. The
LIWC tool counts the frequency of words in each category and
transforms qualitative text data into quantitative data to
understand the psychological state and communication style of
individuals through their writing. LIWC has also been applied
to extract the linguistic cues for knowledge adoption,
information adoption, and perceived helpfulness of web-based
health reviews [23,24] and has been used for understanding the
psychological behavior of people in OHCs [25].
Postings were classified into 2 groups—matched needs and
unmatched needs. The linguistic features were compared
between these 2 groups using parametric and nonparametric
tests according to the parameter listed in LIWC. If the variables
obtained fit the requirement of a parametric test, a 2-tailed t test
was conducted. A Mann-Whitney U test was used for variables
that violated the normality and assumptions test. All statistical
analyses were conducted using IBM SPSS Statistics for
Windows (version 26; IBM Corp), with a statistical significance
assumed for P values <.05 [20]. Cohen d was used to quantify
the effect size between the 2 groups.
Ethical Considerations
As web-based data were publicly available for this study, an
approval for exemption was obtained from the institutional
review board at the University of Pittsburgh
(MOD20030179-002).
Results
Overview
A total of 1996 postings were collected from Reddit. In the
initial screening of the 1996 postings, 1568 (78.56%) postings
were selected and 1140 (57.11%) postings were identified for
relevance. After excluding the postings without comments or
OP return, 21.93% (250/1140) of the postings were annotated
quantitatively and analyzed qualitatively using thematic analysis
(Figure 1).
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Figure 1. PRISMA (Preferred Reporting Items for Systematic Reviews and Meta-Analyses) flowchart of Reddit post screening among women with
intimate partner violence experience between 2020 and 2021. OP: original poster.
Types of Help-Seeking Advice Received
The types of help received were divided into information support
and emotional support. Overall, 97.2% (243/250) of the postings
received information support, whereas 87.6% (219/250) received
emotional support (Table 1). Among the information support
received, the top 5 common types of information help received
were IPV knowledge (414/1568, 26.4%), IPV shelter (242/1568,
15.43%), legal information (190/1568, 12.12%), health care
information (187/1568, 11.93%), and safety planning (131/1568,
8.35%). In terms of emotional support, the top 3 were
encouragement (570/1173, 48.6%), empathy (174/1173,
14.83%), and mutual understanding (159/1173, 13.55%).
Approximately one-third (74/250, 29.6%) of the comments
received networking offer, and more than two-thirds (195/250,
78%) of the comments received experience sharing from OHC
members.
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Table 1. Types of help received by women with intimate partner violence (IPV) experiences in online health communities from 2020 to 2021.
Posts, n (%)
Information support received (n=250)
243 (97.2)Yes
7 (2.8)No
Types of information help received (multiple responses were allowed; n=1568)
242 (15.4)Shelter, IPV center, or agency
190 (12.1)Legal
59 (3.8)Childbearing
110 (7)Police
7 (0.5)Wound assessment, or record
77 (4.9)IPV report procedure, or documentation
131 (8.4)Safety planning
25 (1.6)Finance
37 (2.4)Housing
187 (11.9)Health care information
32 (2)IPV survivors’ network, or online support groups
414 (26.4)IPV knowledge
17 (1.1)Communication
40 (2.6)Miscellaneous
Emotional support received (n=250)
219 (87.6)Yes
31 (12.4)No
Types of emotional help received (multiple responses were allowed; n=1173)
77 (6.6)Love
174 (14.8)Empathy
159 (13.6)Mutual understanding
114 (9.7)Reassurance
79 (6.7)Acceptance
570 (48.6)Encouragement
Experience sharing (n=250)
195 (78)Yes
55 (22)No
Networking offer (n=250)
74 (29.6)Yes
176 (70.4)No
Themes of Help Received
Among the 250 postings, a total of 7 themes and 15 subthemes
were identified from the comments. All authors reviewed and
confirmed the hierarchy of each theme and subtheme. Overall,
seven main themes were generated, including (1) experience
sharing, (2) emotional empowerment, (3) IPV knowledge
display, (4) advice type, (5) clarification of scenario, (6)
networking offer, and (7) daily self-care tips. The 15 subthemes
that were found are shown in Multimedia Appendix 1.
Types of Help Matched
Overall, 80% (200/250) of the postings received matching help
from OHCs (Table 2). Among all types of help annotated as
matching help, only wound documentation was excluded from
the list because no women sought wound information in our
data sets, but some comments include wound information when
they provide advice regarding safety planning instead. Table 3
shows that the highest 2 information needs matched were legal
(90%) and IPV knowledge (86%). In terms of emotional support,
92.5% of the postings were successfully matched with emotional
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help. However, finance (57%), communication (53%), housing
(50%), health care information (48%), and IPV survivors’
network (33%) received the least information help among
postings with matched needs.
Table 2. Matching needs annotated among women with intimate partner violence in online health communities (n=250).
Posts, n (%)Categories
146 (58.4)Matched
50 (20)Unmatched
8 (3.2)Partly matched
46 (18.4)Broad coverage
After merging categories
200 (80)Matched
50 (20)Unmatched
Table 3. Information support matched rate among women with intimate partner violence (IPV) in online health communities (n=250).
Matched rate, %Types of support
83IPV shelters and agency
90Legal
66Childbearing
80Police
75IPV report procedure
78Safety planning
57Finance
50Housing
48Health care
33IPV survivors network
86IPV knowledge
52Communication
82Miscellaneous
Linguistic Features
We used the LIWC software to examine the use of 93
prespecified dictionaries (lists of words) between the 2 groups
(ie, matched help and unmatched help). Multimedia Appendix
2 displays the descriptive statistics of posting features from the
annotated data and linguistic features from the LIWC tools
among the 250 postings. All significant linguistic features
between the 2 groups are displayed in Table 4. The average
length of postings was 298 (SD 257) words, and no postings
were generated from the same user ID (ie, person). Among the
250 initial postings, a total of 18 features (n=3, 17% posting
features and n=15, 83% linguistic features) were found with
statistically significant differences between the 2 groups.
Postings with negative sentiment, more comments, and more
number of words in comments were easy to receive matched
help in OHCs. Postings containing words related to health (eg,
medic, patients, physician, and health) or wellness (eg, healthy,
gym, exercise, and diet) were found to be more difficult to
receive matched help in OHCs.
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Table 4. Statistically significant variables of Linguistic Inquiry and Word Count categories with help-seeking results (ie, matched needs vs unmatched
needs) among women with intimate partner violence experience in online health communities (n=250) from 2020 to 2021.
Mean differenceUnmatched needs, mean (SD)Matched needs, mean (SD)Features
Cohen dP valuet test (df)Mann-Whitney
U test (df)
Posting features
0.513<.0013.243
(248)
N/A
b
10.14 (2.98)
14.08
a
(8.45)
Number of comments
0.247.051.561
(248)
N/A1463.84 (803.16)1732.01 (1146.03)Number of words in com-
ments
0.315.05N/A1.561 (248)0.07 (0.32)0.05 (0.41)
Title sentiment
c
Linguistic features
0.328<.001N/A2.074
(248)
0.12 (0.23)0.31 (0.65)Culture (eg, car, united
states, govern, and phone)
0.239.003N/A1.510
(248)
0 (0)0.02 (0.08)Political (eg, legal, court,
law, and congress)
0.308.001N/A1.948
(248)
0.11 (0.23)0.29 (0.64)Technology (eg, Wi-Fi,
computer, and phone)
0.164.049N/A1.037
(248)
0.16 (0.39)0.40 (1.62)Politeness (eg, thank, please,
and thanks)
0.338.02N/A2.137
(248)
1.26 (1.70)0.87 (0.98)Health (eg, medic, patients,
physician, and health)
0.534.047N/A3.376
(248)
0.21 (0.67)0.04 (0.14)Wellness (eg, healthy, gym,
exercise, and diet)
0.245.04N/A1.551
(248)
0.26 (0.53)0.42 (0.68)Emotional anxiety (eg, wor-
ry, fear, afraid, and nervous)
0.351.03N/A2.223
(248)
1.29 (1.24)1.85 (1.69)Lifestyle (eg, work, home,
school, and working)
0.227.048N/A1.435
(248)
0.09 (0.22)0.17 (0.37)Leisure (eg, TV, cook, chat,
fun, and play)
0.337.006N/A2.132
(248)
0.25 (0.41)0.46 (0.66)Home (eg, home, lawn,
room, and furniture)
0.334.004N/A2.112
(248)
0.52 (0.63)0.87 (1.12)Work (eg, work, school,
working, and class)
0.386<.001N/A2.444
(248)
0.22 (0.43)0.55 (0.92)Conversation (eg, yeah, oh,
yes, and okay)
0.032.005N/A0.010
(248)
0.19 (0.39)0.42 (0.85)Netspeak (eg, I know, u, lol,
and haha)
0.249.004N/A1.577
(248)
0.03 (0.08)0.12 (0.41)Assent (eg, yeah, yes, okay,
and ok)
a
Italicized text represents higher tendency on associated features.
b
N/A: not applicable.
c
Title sentiment was assessed on a scale ranging from 1 to 1, with negative values indicating negative sentiment and vice versa.
Discussion
Principal Findings
This is the first study to investigate the types of help and advice
presented in OHCs among women with IPV experience through
qualitative analysis and quantitative linguistic analysis in a
western context. We found that most women received
information and support that matched the type of help they
requested in their original postings. In addition, the majority of
the postings (178/250, 71.2%) received response in which OHC
members shared their own experiences, mistakes, and lessons
learned.
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The willingness of OHC members to share their own IPV
experiences in response to posters’requests for help correlates
with one of the presumed reasons for the existence of this
subreddit community—to serve as a platform for experience
exchange and support for people with IPV experience or other
passion for the topic. By sharing their own experiences, OHC
members illustrate credibility to offer advice to the OP. Our
findings aligned with a previous study by Yan and Tan [26]
regarding OHC members’ perceptions and experiences about
the medical treatment for mental health were related to the
perceived effectiveness of treatment among other OHC
members. Similarly, Fan et al [27] pinpointed that the
experience-sharing behavior was an approach to building trust
with other OHC members. In the IPV context, Krisvianti and
Triastuti [28] concluded that the experience-sharing behavior
facilitates social support and empowerment among women,
whereas Afdal et al [29] reported that using OHC can improve
life satisfaction through experience sharing.
In addition, emotional empowerment was another important
theme identified in the OHC comments. Our study found that
OHC members provided different forms of emotional
empowerment, such as encouragement, empathy, and
reassurance when the OP was lost and helpless, as expressed in
the initial postings. A previous study pinpointed a strong
association between emotional support and IPV severity among
women [30]. Female survivors who either experienced physical
abuse or had unwanted sex with their partner have 2.28 higher
odds of receiving less emotional support, indicating a great
demand of emotional needs in this vulnerable population. Lyons
and Brewer [18] also reported the themes related to the IPV
survivors’ experience during the COVID-19 pandemic [17].
Specifically, one of their themes highlighted service disruption
such as IPV shelters, counseling service, and emergency room
in hospital, which could potentially undermine the help-seeking
initiatives from women. Therefore, it is possible that women
with IPV experience shifted their help-seeking attempts to OHC
web-based environment, where OHC members could provide
emotional empowerment with a timely response regardless of
geographical and time restrictions. Moreover, we found that
women with IPV experience used to seek help by asking OHC
members to prove whether they were acting normal or not
overreacting to what happened in an abusive relationship. Our
findings were consistent with other OHCs’findings in different
contexts ranging from ovarian cancer [31], breast cancer [32],
and pregnancy loss [33]. In the male IPV context,
Sivagurunathan et al [19] also reported the importance of
emotional validation in help seeking after sexual assault.
Therefore, our study consolidated that emotional empowerment
and validation are essential for OHC help seeking among women
with IPV experience.
Furthermore, it is noteworthy that demonstrating IPV knowledge
in the comments is a strategic way to present advice with
credibility in OHCs among women. Our findings demonstrated
that OHC members used to cite IPV statistics from well-known
organizations and highlight their IPV knowledge (eg, trauma
bonding, stages of abuse, reactive abuse, and warning signs of
IPV such as strangulation and choking) to build advice
credibility. When women were confused about their current
IPV risks and condition, OHC members presented their IPV
knowledge to guide them regarding how to recognize warning
signs and navigate them to related resources.
Interestingly, our analysis identified 2 advice styles—directive
and emphasizing empowerment and advice form. Directive
styles were commonly found to urge OP to make decisions and
seriously listen to OHC members in postings with multiple alerts
labeled by Reddit, such as multiple triggers, physical abuse,
and suicidal risk. Some OHC members reacted emotionally
without consideration for OP’s feelings as they were not well
trained with trauma-informed care strategies. Given the
disinhibition effect on OHCs [34], OHC members may not take
responsibility for what they suggested to OP owing to the
anonymity and invisibility environment in OHC.
Regarding comments identified as having more empowerment
and advice given by OHC members, this advice style is viewed
as more appropriate, considerate, safe, and helpful for this
vulnerable population. This result aligned with that of a previous
study that illustrated the importance of emotional support for
women with IPV experience [30]. Nevertheless, a previous
study reported that 37% of the comments contained harmful
messages with survivor-blaming intentions in OHCs [15]. As
we prioritized postings with the highest number of comments,
we filtered postings without comments or those without OP
returning to initial postings. Therefore, it is possible that some
negative responses were not well captured in our analysis.
Moreover, we adopted the LIWC tool to quantify our annotation
results and compare the help-seeking results from a
computational point of view at the word level. As OHC members
may offer help primarily based on the textual description in a
web-based environment, traditional, in-person, help-seeking
factors such as facial expressions and differences in tone of
voice may not apply. Therefore, our results shed more light on
the linguistic and posting features that could affect help-seeking
results in OHCs. As such, displaying politeness in the initial
postings may indicate that OHC members will offer help more
comfortably. In contrast, our results found that postings with
wordings associated with health and wellness have low chance
of successful help seeking in OHCs. One of the possible
explanations is that OHC members are not well trained in
medical terminologies and do not have the related expertise to
address postings with complicated medical terminologies.
According to the scoping review conducted by Perry et al [35],
only 1 OHC featured a moderator with health care professional
qualifications in the related field, whereas most OHCs were
moderated by volunteers or survivors of IPV. Hence, postings
with health or wellness wordings may not be quickly addressed
by OHC members. Future studies can consolidate these results
by inviting OHC moderators for an interview to understand how
they offer help based on textual descriptions.
We also found that posting titles with negative sentiment were
more likely to receive help than using wordings with positive
sentiment. Given the anonymity provided, women may feel
more comfortable in seeking help urgently in OHCs to receive
real-time responses from OHC members [36]. Liu et al [37]
reported that patients with psychological diseases posted more
negative words and emotions than others. More importantly,
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49.5% of women were shown to develop psychological illnesses
after experiencing IPV [38]. It is possible that those who post
negative sentiments may have more complex information and
emotional needs than others, where OHC members may address
their needs and answer their questions easily. Therefore, title
sentiments should be considered as the primary indicator of IPV
severity and urgency in a web-based setting such as OHC.
Implications
This study has the potential to contribute to the management of
women with IPV experience from a clinical perspective. The
results obtained from this study demonstrated the usefulness of
OHCs in providing access to IPV knowledge and a platform
for experience exchange for women; therefore, clinicians are
encouraged to assess their perceived IPV knowledge (ie,
potential risks and consequences of IPV, potential danger, and
safety strategies to protect themselves) before referral to other
departments or planning for next appointment. Clinicians may
provide well-known resources that are available in the OHC
and appropriate to their personal situation. However, given that
professionals do not filter the comments and suggestions from
OHCs, clinicians should remind women to avoid taking all the
advice personally after seeking help in OHCs. Reading other
OHC members’abusive experiences could retraumatize women
with previous IPV experience. If some comments are typed in
a directive manner with harsh wordings, clinicians could advise
women to set a time-out period from reading these comments.
Moreover, OHCs, when moderated by IPV experts, have the
capability to identify comments with a reproachful tone and
provide tailored resource navigation based on the specific
geographical location of users.
In addition, IPV agencies and emergency departments in
hospitals should also establish a protocol to enable nurses,
medical social workers, and other health care professionals to
identify when they should refer women with IPV experience to
OHC. For example, health care professionals can streamline
the process by providing OHC information to at-risk women
after referring them to in-person support groups or IPV-related
agencies. Moreover, women should be advised about how to
seek help in OHCs effectively by emphasizing the value of
choosing a post title with negative connotations and seeking
help politely in the initial postings. Furthermore, a recent review
discussed how an automated system can assist IPV detection
[39]. Our study is a starting point for developing future IPV
automatic system interventions that allow users to search for
comparable experiences effectively. For example, IPV
experience can be further categorized based on positive and
negative feedback by domain experts and a computational
algorithm can be trained to classify relatable experiences based
on the needs of women, which could facilitate a better
help-seeking experience in OHCs.
Limitations
It is noteworthy that the results of this study should be
interpreted with caution. First, owing to Reddit’s privacy policy,
we could not collect the users’ demographic data, such as race,
age, and educational background. Second, Reddit is only widely
recognized in a few English-speaking nations, such as the United
States, Canada, the United Kingdom, and Australia. Therefore,
conclusions from this study are not fully generalizable to women
with IPV experiences from other regions. Third, this study
examined the type and pattern of advice provided by OHCs in
1 subreddit community. Future research endeavors should
include more OHCs for analysis and comparisons. In addition,
this study depended on the details provided in users’initial posts
during the screening procedure to determine whether the OP
was female and aged >18 years. However, some users may have
hidden their actual sex and age because of privacy concerns.
Moreover, our study reranked the postings based on their
number of comments and the number of times the OP returned
to the initial postings. As such, it is highly possible that some
negative comments have not been analyzed thoroughly in our
data set. Future studies should evaluate the risky suggestions
or harmful comments from postings and analyze the potential
danger score with an IPV domain expert to prevent
retraumatization in these vulnerable populations. An additional
constraint pertains to the data collection period—from
November 2020 to November 2021. During this period, the
COVID-19 pandemic posed significant challenges, such as
quarantine orders, business closures, and limited access to health
care services. As the World Health Organization has since
declared that COVID-19 is no longer a global emergency, it is
plausible that help-seeking behaviors and available resources
may have evolved after the time of data collection.
Conclusions
This study elicits empirical data about the types of help given
to women with IPV experience and what constructs the advice
credibility among OHC members. Our findings show that OHC
members often describe their own relevant experiences before
highlighting the IPV knowledge to the OPs. In this manner,
OHCs offer an accessible platform for knowledge acquisition
and experience sharing for women who feel baffled and
distressed following their IPV experience. Our study has
implications for developing digital textual initiatives to educate
women about IPV and exploring computation methods to
connect women with others who have similar experiences. In
addition, we assessed linguistic variations between successful
and unsuccessful help-seeking postings in the OHC. Our
findings demonstrate how linguistic variations in politeness and
title sentiment may affect to what extent OHC members meet
the help seekers’ needs. Future studies should examine the
language variations between postings with the most and the
fewest comments. Overall, the responses from OHCs are
constructive to provide various sources of help for women with
IPV experience, including emotional validation, IPV knowledge,
and relatable experiences, so that they can identify the warning
signs and potentially far-reaching consequences of their IPV
experiences.
Acknowledgments
The authors would like to express sincere gratitude to all the undergraduate annotators for this project.
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Data Availability
The data sets generated and analyzed during this study are available from the corresponding author upon reasonable request.
Conflicts of Interest
None declared.
Multimedia Appendix 1
Thematic analysis to explore the help received by women with intimate partner violence experiences in online health communities
from 2020 to 2021.
[DOCX File , 22 KB-Multimedia Appendix 1]
Multimedia Appendix 2
Descriptive statistics of posting features from annotated data and linguistic features from Linguistic Inquiry and Word Count.
[DOCX File , 27 KB-Multimedia Appendix 2]
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Abbreviations
IPV: intimate partner violence
LIWC: Linguistic Inquiry and Word Count
OHC: online health community
OP: original poster
Edited by A Mavragani; submitted 16.05.23; peer-reviewed by N Rao, C Pehora, Z Guo; comments to author 20.07.23; revised version
received 09.08.23; accepted 27.08.23; published 09.10.23
Please cite as:
Hui V, Eby M, Constantino RE, Lee H, Zelazny J, Chang JC, He D, Lee YJ
Examining the Supports and Advice That Women With Intimate Partner Violence Experience Received in Online Health Communities:
Text Mining Approach
J Med Internet Res 2023;25:e48607
URL: https://www.jmir.org/2023/1/e48607
doi: 10.2196/48607
PMID: 37812467
©Vivian Hui, Malavika Eby, Rose Eva Constantino, Heeyoung Lee, Jamie Zelazny, Judy C Chang, Daqing He, Young Ji Lee.
Originally published in the Journal of Medical Internet Research (https://www.jmir.org), 09.10.2023. This is an open-access
article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/),
which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in the
Journal of Medical Internet Research, is properly cited. The complete bibliographic information, a link to the original publication
on https://www.jmir.org/, as well as this copyright and license information must be included.
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